My 5 year old nephew was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG) on October 24, 2013.
Diffuse intrinsic pontine gliomas (DIPG) are highly aggressive and difficult to treat tumors found at the base of the brain.
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Found your blog on the Magical Fairly Missions. My daughter Karis was diagnosed with a brain cancer last year, medulloblastoma. I know how it feels to receive such devastating news and not know what to do. Miracles happen everyday and medicine is constantly changing. Keep your faith strong and trust in God. We'll be praying for Daniel over here in Topeka, KS. :) ~ Stephanie
Hello I read about Danny and I am interested in Donating an RSO Oil Treatment for him, I have sent an email regarding more information on the treatment. Thanks
I just heard about your story and I want to wish Danny the best in his fight. A friend of mine has a son who has a brain tumor. Check out his CaringBridge site - they were able to get a clinical trial of a drug from Pfizer to slow the growth (Palbociclib), as well as use a special high heat laser (Visualase) to ablate the tumor. I just wanted to pass this along so you knew about the treatments that they have found to work for their son. Thinking of you, and happy 6th birthday coming up to Danny! http://www.caringbridge.org/visit/gavinpierson
My 16 yr old son was diagnosed with Grade 3 Anaplastic Astrocytoma in Feb 2014. Because of the location of his tumor, it is also inoperable. My son read about Danny's story and was very touched. He's a very talented graffiti artist and will be sending Danny a custom card to put a smile on his face. It may not get there in time for his birthday, but he will get it soon! Stay strong! We are together in the fight!! Happiest of birthdays to Danny and I hope he enjoys his wonderful day!
I can't imagine what your family is going through, but my thoughts and prayers are with you all. Stay strong little man, you are what a real warrior looks like! <3
Mary M (Nova Scotia Canada)
ps I'm sorry I put 5th instead of 6th birthday on your card...sometimes us old grandmas get a bit forgetful. :)
HAPPY 6TH BIRTHDAY DANIEL!! EVERYONE HERE AT THE TOWNSEND HOME IN UNIONTOWN, OHIO HOPE YOU HAVE A WONDERFULLY BLESSED BIRTHDAY!! MY DAUGHTER ALSO HAS BRAIN CANCER.
This is my fiancés email address. Several years I was diagnosed with inoperable and untreatable head tumor. I was part of an experimental treatment plan conducted at Massachutes General Hospital, Boston Mass. Specifically at Raymond Burr Proton Clinic. the treatment was pain free and mostly successful. Although I was given only 3 yrs. to live, 5yrs. later I'm still going strong. Dr. Norbert Liebsch is the lead Dr. in the program with many successful outcomes. Please don't hesitate to contact them directly as this program offers a lot of hope for your condition. The phone number is 617-726-0922. Tell them that Dawn Patterson referred you. My thoughts and prayers are with you. May this bring you many more Happy Birthdays.
Wanted to make sure you knew about these resources: http://www.lucyslovebus.org/sites/default/files/2014_fullpatientapp.pdfhttp://www.burzynskiclinic.com/patient-stories.html
Please consider marijuana treatment as soon as possible for Daniel (legal in Massachusetts) as Spanish studies show it makes cancer cells commit suicide and can arrest cancer in it's tracks and shrink tumors. Plenty of online info available. Please contact me for more.
Read about Danny in today's newspapers here in Mumbai, India, today. Very touched about it. Please accept our love and care for Danny.
We have some indian Ayurvedic anti-cancer medicine, which has worked quite well in some cases, and will write to you about it, if you wish to try. Besides, for me, Prayer also, works best when faced with illnesses and situations beyond human power. had a close shave with Cancer in 2000. will pray for Danny. Have faith, courage and GOD BLESS.
Im glad to see all the pictures of birthday cards and read follow up. I was wondering how to see the turn out of all this. My son and I sent a card from Kansas. Glad to see all the wonderful smiles. God Bless.
hi Danny, I m sending you this message to tell you how proud I m of you, I m a teacher and I ll tell my student about how courageous you are facing life challenges and how you tkae life the way it is accepting all what it brings and making every minute count, May every moment of every day brings you joy and happiness, Ah by the way, super Mario is happy to have you as his partner.... sent with love
Found your blog on the Magical Fairly Missions. My daughter Karis was diagnosed with a brain cancer last year, medulloblastoma. I know how it feels to receive such devastating news and not know what to do. Miracles happen everyday and medicine is constantly changing. Keep your faith strong and trust in God. We'll be praying for Daniel over here in Topeka, KS. :) ~ Stephanie
ReplyDeleteHello I read about Danny and I am interested in Donating an RSO Oil Treatment for him, I have sent an email regarding more information on the treatment. Thanks
ReplyDeleteI just heard about your story and I want to wish Danny the best in his fight. A friend of mine has a son who has a brain tumor. Check out his CaringBridge site - they were able to get a clinical trial of a drug from Pfizer to slow the growth (Palbociclib), as well as use a special high heat laser (Visualase) to ablate the tumor. I just wanted to pass this along so you knew about the treatments that they have found to work for their son. Thinking of you, and happy 6th birthday coming up to Danny! http://www.caringbridge.org/visit/gavinpierson
ReplyDeleteMy 16 yr old son was diagnosed with Grade 3 Anaplastic Astrocytoma in Feb 2014. Because of the location of his tumor, it is also inoperable. My son read about Danny's story and was very touched. He's a very talented graffiti artist and will be sending Danny a custom card to put a smile on his face. It may not get there in time for his birthday, but he will get it soon! Stay strong! We are together in the fight!! Happiest of birthdays to Danny and I hope he enjoys his wonderful day!
ReplyDeleteHappy happy birthday from Japan, Have a great day!!
ReplyDeleteI can't imagine what your family is going through, but my thoughts and prayers are with you all.
ReplyDeleteStay strong little man, you are what a real warrior looks like! <3
Mary M (Nova Scotia Canada)
ps I'm sorry I put 5th instead of 6th birthday on your card...sometimes us old grandmas get a bit forgetful. :)
Happy birthday Daniel! Have a super 6th one. You are in my family's thoughts and prayers. Stay strong, God will work a way out.
ReplyDeleteZubin
HAPPY 6TH BIRTHDAY DANIEL!! EVERYONE HERE AT THE TOWNSEND HOME IN UNIONTOWN, OHIO HOPE YOU HAVE A WONDERFULLY BLESSED BIRTHDAY!! MY DAUGHTER ALSO HAS BRAIN CANCER.
ReplyDeleteThis is my fiancés email address. Several years I was diagnosed with inoperable and untreatable head tumor. I was part of an experimental treatment plan conducted at Massachutes General Hospital, Boston Mass. Specifically at Raymond Burr Proton Clinic. the treatment was pain free and mostly successful. Although I was given only 3 yrs. to live, 5yrs. later I'm still going strong. Dr. Norbert Liebsch is the lead Dr. in the program with many successful outcomes. Please don't hesitate to contact them directly as this program offers a lot of hope for your condition. The phone number is 617-726-0922. Tell them that Dawn Patterson referred you. My thoughts and prayers are with you. May this bring you many more Happy Birthdays.
ReplyDeleteWanted to make sure you knew about these resources:
ReplyDeletehttp://www.lucyslovebus.org/sites/default/files/2014_fullpatientapp.pdfhttp://www.burzynskiclinic.com/patient-stories.html
a few of us made a short video. Happy Birthday Danny! love and prayers form Austin, TX (and The Mario Bros.)
ReplyDeletehttp://vimeo.com/101812087
Please consider marijuana treatment as soon as possible for Daniel (legal in Massachusetts) as Spanish studies show it makes cancer cells commit suicide
ReplyDeleteand can arrest cancer in it's tracks and shrink tumors. Plenty of online info available.
Please contact me for more.
Read about Danny in today's newspapers here in Mumbai, India, today. Very touched about it. Please accept our love and care for Danny.
ReplyDeleteWe have some indian Ayurvedic anti-cancer medicine, which has worked quite well in some cases, and will write to you about it, if you wish to try.
Besides, for me, Prayer also, works best when faced with illnesses and situations beyond human power. had a close shave with Cancer in 2000.
will pray for Danny.
Have faith, courage and GOD BLESS.
Im glad to see all the pictures of birthday cards and read follow up. I was wondering how to see the turn out of all this. My son and I sent a card from Kansas. Glad to see all the wonderful smiles. God Bless.
ReplyDeletehi Danny, I m sending you this message to tell you how proud I m of you, I m a teacher and I ll tell my student about how courageous you are facing life challenges and how you tkae life the way it is accepting all what it brings and making every minute count, May every moment of every day brings you joy and happiness, Ah by the way, super Mario is happy to have you as his partner.... sent with love
Delete