Wednesday, January 29, 2014

Ups and Downs...

It's been a long time since I sat down to write.  We've had such a wonderful month since the last day of Radiation on Dec. 26th.  We've had many family gatherings, celebrated holidays, snowstorms, birthdays and followed Danny on his Make a Wish Trip to Disney World.  He seems to be doing well.  You'd never know he was in a battle against DIPG.  He's energetic, funny, inspiring, positive and happy.

It's hard to imagine three months have past, maybe its because of the holidays.  My courageous nephew has completed 6.5 weeks of radiation, he's gone on a "Make a Wish" trip, and is now gearing up for an MRI on Thursday.

After the holidays, we looked forward to our trip Florida. Carley, Dan, Danny and Matthew left on January 11th.  They had a few days alone and enjoyed Sea World and Universal Studios.  On January 13th we surprised them at Universal Studios...We knew they were going to be in the parade because an extended family member that works for Universal set it up for them.  She also set up our surprise visit.  They were in shock when they saw us standing on the sidewalk.  For the next couple of days we enjoyed all of the Disney Parks.  The kids had a blast going on rides, meeting the characters and being together.  We had an amazing time and non of us wanted the fun to end.  We knew coming home would bring us back to reality.  Chemotherapy and Clinic took place on the following Monday.  During the clinic appointment, the doctor told Carley it was time to schedule the follow up MRI.  We know in our hearts Danny is doing fantastic, but also know that things may not be at as they seem.  We are positive and hopeful yet we are all on edge, worried about the results.  I know how I'm feeling, I can't imagine how everyone else is feeling.

Please keep us in your thoughts and prayers this week as we prepare for Danny's MRI on Thursday. 

Here is a video of our trip:)

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