Friday, November 22, 2013

The most important person in the room is the child

Daniel has completed two rough weeks of radiation. Each day is different. He's been having difficulty getting out of the house each morning. Once he's in the car, he calms down and enjoys the ride until he realizes where we are. He becomes anxious and nauseous. We have to roll all the windows down in the car so that he feels better. Once we arrive at the hospital, things get a little better. He knows there is a reward at the end of treatment, plus he gets to play in the playroom until his treatment starts.

Every day is different, from waking up after treatment to car rides to the hospital. Today, he slept longer after treatment. He seemed disoriented when he woke up. He was angry, hungry and it took a while to get him settled.  Yesterday, he was so exhausted that he fell asleep on the ride to the hospital. The radiation is starting to catch up with him. 

Each day we plan a reward activity. Monday, we went to the Enchanted Village. Most of his cousins were able to join him. The kids had so much fun playing in the snow, riding the Polar Express and going to Ikea for dinner. Strange spot, I know, but the kids loved it and that's all that mattered. We (Gail, Carley, Mom and Dad) sat at a table across from the kids. They were laughing and joking around the entire time. It was THE BEST! Their laughter is contagious and I captured it on video without them knowing. Tuesday, Daniel went to the movies. Wednesday, it was cousin day again. We played at Gaga's before heading to Nana and Gramp's (home for Daniel). They did legos, played video games and watched a movie. 

Monday he starts Chemotherapy. He will receive Chemo every other Monday for a year. It will continue after he has completed his radiation, which ends on Dec. 26th. Next week is a short week for us. He will only go in Monday, Tuesday and Wednesday. He gets to enjoy a long break over the Thanksgiving weekend.

My sister is so amazing. Her love for her boys is pure. They are her world, her life, her breath, her everything. She is strong and courageous. She smiles when she doesn't want to. She cries when she's alone. She does what she has to do because she is a mom. I wonder how she does it everyday. She has to, she has no choice. Mothers can do ANYTHING! You have to because you know that you're not the most important person in the room...the child is. 

Please excuse my pictures, I took them with my phone:(:(:(

 Let it snow, Let it snow, Let it snow!

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