Daniel was a warrior this week. He completed two radiation treatments
and started to fall into a routine. On Thursday, he was less
apprehensive about the needle because he knew he wouldn't feel it. He
was cranky and hungry, but walked into the room with a few tears. The
late morning appointments are tough since he cannot eat after midnight,
but that will change next week. Carley greeted the nurse in the
hallway after he completed his first treatment. Some kids wake up happy
from anesthesia, others wake up tired....Let's just say the nurse asked
Carley if she could talk to him about using his words and not his fists
when he wakes:) Poor little guy.I got to spend time with Daniel after
his treatment. Let me tell you, he had his energy and laughter back.
He was jumping around, playing games with Mae, Abby and Matthew and
laughing at a show on the computer. His laughter is contagious!He fell
asleep around 7PM but woke up sick at some point in the night. Carley
gave him some anti-nausea medicine to make him feel better.Friday, was
much easier. He was ready to go in, his appointment was a little later
and much shorter. When they arrived at the hospital, the life coach
greeted them. She promised Daniel an Ipad to play with, which she
brought in from home. The Ipad helped distract him while Daniel waited
to be called. He got up, walked into the room and asked Carley to hold
him while he fell asleep. Carley was standing next to him when he woke
up, he ate some food and off they went home.
A few people are asking "How can we help?" or "Can we send a card or gift"
We have set up a PO Box for Daniel. Please feel free to send here:
Daniel Nickerson
P.O. Box 212
Foxboro, MA 02035
My 5 year old nephew was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG) on October 24, 2013. Diffuse intrinsic pontine gliomas (DIPG) are highly aggressive and difficult to treat tumors found at the base of the brain.
No comments :
Post a Comment